I’ve done dozens of diets, been prescribed Black Beauties & other speed (starting at age 8), belonged to many gyms, taken Phen-Fen (with success, but with heart valve damage), tried Topamax (fail), used Wellbutrin (fail), had a Roux en Y Gastric Bypass (with fabulous success, then epic failure), done hypnosis & acupuncture (fail & fail), become a daily Mindfulness Meditation fanatic (fail for weight loss/huge win for pain relief), have tried to have anorexia, then bulimia, hand-written hundreds of thousands of journal pages, letting them “hold” my pain, shame, revulsion, self-hate, wishes, fears, hopes &, eventually, resolution with my size.
I remain in resolution.
I will never diet or take diet drugs again. Ever.
Time & Money
Thinking about the masses of time and money I’ve spent trying to lose weight makes my head spin.
Going to the gym
Writing out menus
Researching rules and techniques for success
Real life or online support group meetings, including social networks talking about losing/gaining weight
Shopping slower to read labels and make sure food is “appropriate”
Learning new cooking methods
Fighting with family about the change in foods in the fridge and cupboards
Probably eventually buying more “bad” food for my family because they whined so much about foisting my diet on them
$28,000 cash for RNY gastric bypass (GB)
Can I include the time and money (including the taxpayer’s) for the years of therapy discussing and crying about all of this?
I was a Fat Activist in the mid-late 80’s, mostly in the lesbian community. I’ve written about being fat-positive for almost 3 decades.
In the beginning, when I was in my 20’s and early 30’s, I was healthy… labs were fine, no diabetes, my joints or feet didn’t hurt. I crowed (bragged, was arrogant) about how it was the fat-hating that made fat people sick and die, not the fat itself.
Now, at 56-years old, I see how delusional I was. I am well on the road to dying before most people in my family did, and they all had diabetes, too. My future resides in my memories of my Cuban relatives & the diabetes complications they endured before dying. Heart attacks, going blind, having toes, then feet cut off, eventually dying in a coma because the body just gave up.
I see it coming as if it was a roaring train heading right for me.
Litany of Pain
Here are my fat-related illnesses and issues:
Type 2 Diabetes (diagnosed at 34 years old), now on 2 insulins and metformin
I heal terribly because of the diabetes, often needing antibiotics for residual infections
Stage 3 Kidney Disease from the diabetes
Pain with every step I take
Osteoporosis and arthritis in my feet, which have broken 3 times just from walking for exercise, and one foot breaking while swimming
Broke one foot falling off the Wii Fit Board trying to exercise… needed 3 surgeries to repair
Arthritis in my lower back, was on opioids for 8+ years for the back pain, becoming incredibly addicted, finally getting clean 3 years ago (yay me!) Now I use Mindfulness Meditation for pain relief, though many times I wish for some Norco.
It took me years to find surgeons I felt safe with to get my 4 hernias repaired (one surgery) and then my gallbladder out (a separate surgery, with 3 hospital visits afterwards because of infection)… several turning me away because of my enormous belly size (blessedly, I found the docs and those issues are resolved)
Bone loss from possibly 2 main sources: lack of exercise & the GB
Walking with a walker, but should be in an electric wheelchair, my feet hurting so badly
Using an electric wheelchair when I shop
My world has gradually become smaller and smaller. After 32 years in birth work (where I hurt daily as well), I am now a sedentary Phone Sex Operator. I live in a small space and leave the house only for doctor appointments, physical therapy, shopping and seeing my doggies at mom’s house.
Writing that makes me sad.
Part 2 On Its Way
In Part 2 of My Wall-E-esque Life, I will talk about the place the Fat Advocacy Movement does have in our lives. While it might not be health (despite the incessant refrain that it does), it is most assuredly have an enormous place in our physical and emotional world.
Fat, Weight Loss Surgery, Weight Loss Medications, Weight Gain all discussed.
I wrote and published this in my Navelgazing Midwife blog on May 3, 2007. Pictures have been added, but nothing else has been changed. I’m sitting here smirking about how arrogant I was throughout my life thinking I would find *A CURE* for my obesity. I was delusional, even in this post.
Pacer. I was called Pacer throughout Junior High because I had a “wide rear end” like the GMC car of the 70’s.
I’ve had eggs thrown at me while walking around the block trying to lose weight.
Another year, I had a kid throw oranges at me while doing the same thing.
I’ve been moo’d at hundreds of times.
I’ve been laughed at, stared at, and ignored.
I’ve had to sit at a table and chair because I couldn’t fit in a desk at school (for years).
I’ve had to shop from a catalogue (pre-Internet) because no store had clothes large enough for me.
I went without bra and underwear for 15 years because I couldn’t find a decent-sized fit that didn’t cut the hell out of me.
I lived with yeast under my pannus and breasts for decades because I thought it was “chafing” – trying to cure it with powder, corn starch, Gold Bond, zinc oxide, keeping hankies or bandanas tucked under my pannus, struggling to keep it dry. I blew dry it half a dozen times a day and still it remained seeping moist. Once I learned it was yeast, in my thirties, and used Monistat on it, my life transformed!
My thighs’ friction burned each other to the point of losing skin, especially when wearing panty hose (de rigeur in the 70’s) and I used bandanas to keep my thighs protected from each other. I remember learning about bloomers and thought they were the miracle of the world. I never owned a pair, but quickly thereafter, bike shorts came into my reality and I have never been without them again.
I hobbled so badly a woman took me aside at a dance and told me about Birkenstocks. She said she hobbled from her fat, too, until Birkenstocks and they saved her feet. Poor, I asked her how much they cost and when she told me they were almost $100 I almost choked! She told me they were worth the ability to walk and somehow I manifested the money and have only worn Birkenstocks since. I now own 20+ pairs.
I’ve sat on airplanes and spilled onto two seats, using two seatbelts, almost needing three. I either flew on near-empty flights or flew with my partner so I could seat-share with her
I lived with the food voices speaking, whispering, and screaming inside my head my entire life except for three distinct times: when I was on Phen-Fen, during the first year after the gastric bypass and now, on Topamax. When the food voices are “on,” they are incessant and never-ending. They don’t take a breath, rest, relax, and stop even for a second to consider my feelings or sanity – they merely run and Run and RUN through my mind until I want to scream – or eat to make it shut up. And even if I eat and the voices recede to the background for a moment, it isn’t but a moment before they are loud and screaming yet again. Is it any wonder I wanted to make them shut up?
From Whence I Came
I was dying of being 350 pounds. I am not dying of being 220 pounds. I can live easily and delightfully at 220 pounds. Would I like to eliminate the pannus I have from having three kids? Sure! Will I? Maybe, maybe not. Do I wear sleeveless dresses and shirts even though I have swinging arm skin? You betcha.
I remember what it was like being fat(ter). I remember the sadness, the anger, the feeling of being a victim I felt. I remember how I didn’t fit in – literally. I remember how I didn’t fit in chairs, through turnstiles, on rides, in booths. I remember how it felt every single time I would go out of the house, heave myself into my car, heave myself out of the car, walk into and out of a store, feel myself looked at by children and teenagers… and many adults. I remember ripping clothes because they were too tight, too old, I squeezed in the car and they got caught between me and the steering wheel. I remember being watched while shopping for food. I remember hating eating out because people watched me. I remember eating in secret. I remember hiding food because I didn’t want people to see how much food I ate. I remember hating how little control I had over myself. I tried, every day, to do better. To stop the voices. To stop eating. To stop eating so much. I hated being so observed.
I remember using my writing skills to move Fat Acceptance forward by outlining each ride at Disney World (I went by “gardenia” back then) and how fat people would do on them… writing about health care and fat acceptance… writing just using the word “fat” (which made some people [usually not fat] very uncomfortable) itself!
I’ve been to rallies and stood next to Fat Acceptance chicks and spoken on behalf of Fat Moms and Fat Dykes – asking (demanding) that we get decent chairs at the Gay Pride Festival, that we be remembered when tee-shirts are ordered at all events, and that everyone remember fat is just another way of Be-ing.
When I got really angry, though, was when I started seeing my lab work going downhill. For years I’d bragged about how great my lab work was even though I was fat. Until I was 34, everything was great. Then, my Hemoglobin A1C, my glucoses, my cholesterol… everything went to shit. I didn’t pay that much attention until I was hospitalized for a kidney infection that was complicated by extremely high glucoses. With a family history of diabetes (I am Cuban); I couldn’t just sit and watch the glucose/kidney correlation with abandon.
I’d always despised when people said they’d had Weight Loss Surgery (WLS). I disgustedly spat out the words, “Mutilating Surgery” as I watched a fat person choose WLS. I didn’t even want to hear their story. I didn’t care. There wasn’t reason enough to me for someone to cut apart their body that way. It was repulsive to me.
Weight Loss Medications
Drugs were no different. I’d been given Black Beauties at 10 years old and a variety of other weight-loss drugs over the years and none of them worked and all of them made me even fatter.
Diets were stupid and I’d long ago given up on any diets. (At least publicly.) Privately, I tried a couple for a week or so, but couldn’t ever do anything for longer than that.
But, when I was getting sick, I had to do something and chose the method of the moment and that was Phen-Fen. It seemed ideal and, at that time, it was.
Phen-Fen was a dream! Within 3 days, my mind shut up and the voices were gone. I couldn’t believe something could actually make the voices stop! I loved it. I was on Phen-Fen for 19 months and lost 111 pounds. I was still 230 pounds, so wasn’t any thin thing, but I loved where I was – in a silent world of normalcy.
When they took Phen-Fen off the market, the voices returned and came back in a furor I’d never heard before. It was as if they were so angry at being silenced for so long, they were going to tell me 19 months’ worth of what they wanted me to hear. I was forced to listen. And I ate. And ate. And ate. I gained 130 pounds in 9 months.
Immediately, my diabetes, cholesterol, triglycerides, sleep apnea, stress incontinence, PCOS, IBS became issues I would contend with for another 10 years. Sure, I’d end up with a heart defect from the medications, but even all these years later, I waver about whether I would take Phen-Fen or not if it were legal again. The drug’s quieting effect was that restful to my mind.
Weight Loss Surgery
When the illnesses overtook my body and I was so limited in mobility and I was really looking at the last days of a very unhappy and sickly life, I had to make a choice about what I was going to do and I chose the Roux en Y Gastric Bypass. It was almost cruelly ironic. I couldn’t help but laugh. My fat friends, long gone from my now world, would have been disgusted and would have been… long gone… just at the news of my choice.
My choosing to have Weight Loss Surgery (WLS) reminded me of lesbian friends who went back to men or Christian folks who chose abortion or other such dichotic, head-twisting ideas that make one’s circle of friends wonder what got into us. If I hadn’t been in my own body and head, I’d have thought I’d lost my mind.
What was I about to do? What did I expect out of surgery? Did I think I was going to be a svelte size 6 at the end of the gig? What was I going to do with all my loppy skin? Could I love me smaller than the fat chick I had known and loved for 40 years? Would I even know me smaller? What would I fight about/for now? If I didn’t fight for Fat Chick Rights anymore, who would I be? If I fit in the chairs, who would I be mad at? I was so worried about being lost. So lost.
I had surgery April 5, 2001 and was meticulous with my post-op care and therapy. I lost 100 pounds in 10 weeks simply by being compliant. I wasn’t racing to lose weight, but was racing to save my health and within days, I was off most of my medications and within weeks, all of them. I ended up losing 190 pounds in a year, but wigged out when I put on a pair of size 8 jeans. I absolutely loved being able to shop anywhere, adored walking, crossing my legs for the first time in my life, sitting on my partner’s lap, fitting anywhere I tried (and it took years to figure out my own size in relation to things) and doing cartwheels (I have pictures). My kids didn’t know what to make of me!
By year three, I’d regained almost 100 pounds. I was still fairly healthy, but mobility was becoming an issue once again. The sleep apnea was returning as well. The voices had returned with a vengeance. It was the worst of all the returning difficulties.
(I wasn’t like some of my co-WLS friends who were suicidal because of weight gain. I took it in stride, knowing that most WLS post-ops regain 50% of their weight back. It didn’t make me do more than shrug and sigh about my recurring health concerns. I had thought I’d had enough incentive to keep enough weight off to keep those at bay, but, alas, I was as human as the rest of the gang.)
I never had any illusions of being small forever, but I didn’t really think I’d have to diet again. And yet, I found myself considering diets – the most disgusting shit fat people are told they have to live on in order to be treated humanely in this society.
Blessedly, I still couldn’t eat the massive amounts of food I’d eaten pre-op. While many say they are fat without eating thousands of calories a day, I ate 8000-10,000 calories a day and was unable to see that – or admit that – until I’d had the gastric bypass. I was still able to eat plenty to weigh 250, though! Even with a stomach the size of a shot glass. How’s that for a food addiction?
Anyway, this isn’t really meant to be a play by play of my diet history, but know that through the last few years, I tried a few diets, drank that crap Slim Fast (recently), considered Opti-Fast, Nutri-System, and anything else I could think of that I couldn’t do before WLS and have failed just as miserably now as I did then. How could I think it would be different?
What I really was searching for, however, wasn’t the loss of weight; it was the silencing of the voices inside. The screaming inside my head was becoming so loud; I could hardly hear myself think. Some days, I thought I would go crazy from the cacophony. I begged my psychiatrist for help, over and over again. Please, please, don’t you have something for these voices? You have something for the auditory hallucinations of my Bipolar Disorder, where are the medications for this? For a year, she worked with me to get my BPD and my extremely precarious depression into a place of balance before she would even begin talking about food voices. Once I was stable enough on the meds, she whispered a possible solution.
Topamax has become my/the new Phen-Fen and I am blessed to have it in my life/head/mind.
Since starting Topamax, the voices have left completely. I am able to eat when hungry, stop when full (to my pouch’s full, not my old stomach’s full), and not be hungry again until a real mealtime is supposed to be. Before Topamax, I grazed nearly continuously and ate meals inbetween the grazing. Since starting the medication, I have lost 30 pounds, sleep apnea, the feet pain, the knee aches, the glucose spikes and my periods are regular again. Just those 30 pounds made a difference.
I am not on medication to lose weight. I am on medication so I don’t try and crush my hands through my skull and make my head shut up its crazy never-ending screaming for food, Food, FOOD. I don’t know what it is in my bio-chemical make-up that creates those voices, but if I hadn’t ever had Phen-Fen before the Topamax, I’d never have known the voices could be quieted; I’d never have even known the voices had a name.
But, I know them now and they are what made me the fat, angry woman. The voices.
So, this still fat woman isn’t so angry right now because the voices are quieted… drugged, if you want to say that. I don’t really care what you want to call it; they have shut their damn mouths! I can think, function, meditate, talk and even make love without hearing the continuous imploring to find food. I only hope the medication doesn’t have the same sad ending Phen-Fen had, of course, but I’m living in this moment… staying in the joy today.
Circumstances surrounding my life have made me sad and even mad at times… the way people have treated me, not treated me, the way I have had to settle for less (so to speak) most of my life because of being so fat, being called names, kids thinking I was pregnant years after having had my babies, looking in the mirror and seeing someone I could barely tolerate looking at. I wonder now, not so fat, if I am still mad at those things. I am certainly unhappy that my fat sisters and brothers have to suffer those indignities I used to suffer – but I also see that people are far fatter today than they were when I had surgery 6 years ago.
(I have made the interesting observation that I spent my childhood as the fat freak and got WLS as an adult and soon enough, more kids will be fat than not and those who have WLS will be the thinner freaks!)
As a fat chick, I also had such a great life as a very sexually active dyke… danced and played and support grouped myself silly! I might not have been able to walk all over the world, but I sure could ECV all over The World (Disney World, that is!)! My sedentary lifestyle left me plenty of time to write and develop Internet relationships, many of which are now a decade old. I am in a glorious relationship with my Sarah who loves fat chicks of all sizes and I am mom to 4 great and wonderful now-grown kids who loved their mom fat and who are extremely de-sensitized to fat people look-wise, yet highly sensitive to their needs when out and about. I am very proud of them and their love for people; I know that my fatness had a giant (har) place in their gentleness and amount of kindness for different people.
Making Space for Fat Folks
Fat acceptance certainly still has a place in my life. I still work hard to keep fat information in the forefront in my life. My holistic healthcare office accommodates fat folks as easily as non-fat men and women. We have gowns that fit people up to 600 pounds. We have chairs that hold 550 pounds. I made sure the massage tables held 500 pounds. We have a chiropractic table called a Hi-Lo Chiropractic Table that allows those with mobility issues to stand and be lowered gently instead of having to climb on the table. Our pregnant women use the Hi-Lo, too, of course – they can lay on it, belly down, because the middle drops out… sometimes the only time they ever get to be on their stomachs during their pregnancies.
I have a speculum that is appropriate for the women who might need that. I made sure the exam tables were situated in a way that the legs would be comfortable during an exam (I typically don’t use stirrups, but can if a woman wants to). I own a blood pressure cuff that not only has a large cuff, but also has a thigh cuff for a super-size person’s arm. I also learned how to take blood pressures in areas when the cuff is too small for the upper arm – and teach that to student midwives, nurses and doctors everywhere!
When interviewing practitioners, I make sure they are comfortable with fat clients. I use the word “fat,” so they quit startling when they hear the word.
A Fat Midwife
I am the rare homebirth midwife who takes “obese” clients and doesn’t automatically see them as high risk, sick, Gestationally Diabetic, or an automatic transfer to have a cesarean. I see women as they are and will work with them where they are. We have to address food and food issues – just like I do with every single pregnant woman – it just feels deeper with a fat woman because of how harsh it is in our society. But, being a fat woman myself, I have to believe I can make it somewhat softer, somewhat gentler than it could be with someone who has permi-glazed skinny eyes.
Today, I am a fat, joy-filled, life-filled, spiritually speed-growing woman. I am not perfect. My writing doesn’t adequately say what I want to say all the time. If you want to get to know all of me, come spend time with me… a lifetime with me… and even then, I suspect you won’t know a fraction of who I am. I am still learning who I am. Every day, I see new facets of my Self, places where I think, “Ha! I didn’t know you were there!”
These conversations have allowed me to get thoughts out that have wanted to be written for years. I thank you women for the prodding to move forward. You still might disagree with me and my choices, but your disagreements can’t change them. They are made. I will still have had WLS. I will still have taken Phen-Fen. I will still take Topamax. However, I am listening to you all to be more careful to speak more personally and watch my language when I speak of “some women,” – and I ask that you also have a moment of patience with my prose.
I might still make you a fat angry woman, but I’ll keep writing if you’ll keep reading. I promise to keep listening.
Written 10/12/16 about 10/10/16 Gastro-Intestinal (GI) doctor visit.
So, while I have been fat my whole life and have had my share of medical fat-shaming from fat-hating doctors, it has been a very long time since that’s happened… whether from their shifts in attitude via Continuing Education about inclusivity (or at least learning to keep their mouths closed about their attitudes) or because I learned to open my mouth to shut it down.
The GI Doc
I had signed AMA out of the hospital 12 hours earlier when the doctor, small, a person of color (no clue the origin, but shouldn’t matter),very pretty walked into the Exam Room.
“Oh, my! You look awful,” she said. I’d seen her 3 times before, but I am memorable by what I wear (tie-dye) and being bald. And I am very, very nice to care providers.
“You look like you haven’t slept in weeks!”
“Uhhh, I am at the tail end of a 2-3 month Manic Episode, so no, not sleeping much.”
She went over the paperwork, labs & prescriptions from the night before. She looked at me pretty harshly and said, “You really need to be in the hospital. You are extremely dehydrated.”
I told her no one said anything like that the night before, but I would probably still not have stayed.
She said, “Stubborn.”
The reasons she said I am dehydrated:
chronic diarrhea despite 20 Immodiums and 3 Pancreatic Enzymes a day
vomiting a couple of times a day
taking Lasix to pee! (because of the ankle swelling from the Risperdal)
I would have never recognized the signs of dehydration because they were in the labs! I guess the NP the night before didn’t think I was that dehydrated because she never even said the word to me. My pee is crystal clear; strange. She said that was why my HR was 124 upon discharge. I am sure I shrugged.
She said I needed to get the ER prescriptions filled (the Cipro and Bentyl) and she added Prilosec, Lomotil and Zofran.
This is what my New-Taking-Now meds look like (as they lay against my ballot which went in the mail yesterday!).
“Good-Luck with That.”
“You need to have your gallbladder taken out as soon as possible, before it gets infected.”
Okay, true. Emergency surgeries on fat people have an increased risk of morbidity and mortality.
But there was more to her sentence above.
She ran two of them together, “You need to have your gallbladder taken out as soon as possible, before it gets infected… but I am sure you won’t find a doctor to touch you because of your size.”
blinking as I watched the contempt drip from her lips
“What do you mean?”
“I don’t think you will find a doctor in our area to do the surgery because of (again with the disdain) – the risks.”
I told her I knew that Bariatric Surgeons (who do Weight Loss Surgeries) are ALL GI Docs and I would find one to take my gallbladder out.
“Good luck with that.”
She gave me my paperwork, prescriptions and her bulldozer-sized hatred of fat people… and walked out.
I sat there and cried.
raw Raw RAW
I am strong. Most of the time.
Right now in this (decreasingly) manic place, I feel flayed, nerves on the outer surface of my body. No ability to control what or who hits them. I merely react to the sensations.
This one was an animal claw dragging down my chest… slipping in and gashing my heart as it went by.
I had not felt such shame in eons. And I see doctors all the time! I mean, really, probably not for at least a decade have I been medically fat-shamed. (Many medical & personal fat-shaming experiences to come in future posts.) I felt hideous in those moments after she smashed shit down my throat, squishing it with her heel as she left the room.
I stumbled out of the building, crying still, and drove home.
I began to find my Power, many minutes too late and useless at that point, but I thought, “For fuck’s sake, I cannot possibly be the fattest person on the face of the earth who needs abdominal surgery.”
And then I got mad, but it was a gradual dilution of the mad into the shame where, for a time, if they were able to be separated, you could see they were half and half. Now, 2 days later, I am more mad, but in retelling it to my Insurance’s Case Manager, I cried from shame so hard she kept having to say, “Breathe. Breathe.”
I have been given 3 Bariatric doctors’ names… one in Orlando, one in Tampa and one in Miami. I told my Case Manager I would go anywhere in Florida to get it done. Even if I had to go to Shands Teaching Hospital in Gainesville. I called the doc here in Orlando, explained the situation to the Office Manager and she said she would talk to him and get back to me tomorrow. I told her I knew it was not his usual surgery, that I had had Weight Loss Surgery (WLS) in 2001, but was fat again and needed help, please.