The girls and I headed to Epcot at Walt Disney World, me in an Electric Convenience Vehicle… an ECV… and they walking.
I always had my camera equipment and we carried our yellow Mickey ponchos for the inevitable afternoon thunderstorms.
As we wended our way around World Showcase, we went inside The American Adventureto listen to the Voices of Liberty, an amazing a Capella group that sings beautiful songs about America… and a couple of Disney tunes thrown in. (Not quite sure where the other voices are coming from, but they vanish around 2 minutes in.)
America Gardens Theater
When you walk out of the The American Adventure (which we had been in dozens of times so did not go this day), across the way, is the America Gardens Theater. I have to show you several pictures because they will be relevant later in the story.
Because I had the ECV, we were led to the Handicapped Section. It was about 8 rows from the stage and I was on the far left of the benches.
It being June in Florida, it was damn hot. I tend to get to places early (movies, shows, parties, etc.) and this was no exception. Waiting, it was suffocatingly hot. While we always carried water, that Kakigōri booth in Japan, which is next to The American Adventure, beckoned. We needed something cold!
Kakigōri, a Japanese treat, is a sort of snow cone, or if you know Hawai’i Shave Ice, it is similar to that as well. Besides the syrups they add (your choices), some people enjoy cream in theirs. (Blech!)
Not long after we were sitting in the flippin’ hot sun, the girls were sent on a mission to get the Kakigōri cones. I love cherry, and when they have it, grape. Yum! We three sat eating our snow cones, waiting for the show to start.
It finally did.
Michael Flatley Lord of the Dance
The show began with an amazing display of Irish dancing, men and women, moving in unison, the legs kicking while the tops of their bodies were stock still. It was delightful fun!
Midway through the show, a soloist came out and began singing the most lovely ballad… her soprano voice soaring into the air around us.
Then the feedback started. A blaring eeeeeeeeeeeeeeeeeeeeeeeeeeee that was the strangest thing ever! Disney is meticulous with their sound systems, it was bizarre having feedback.
People were looking around. Why hadn’t the sound people fixed it yet? Crazy!
Then I see a Cast Member wending his way through the crowd… in a hurry… was everything okay? Holy crap, he was heading… towards… me?
“Ma’am, can you get off the ECV’s horn?”
I looked down and my bulging fat belly was leaning on the red horn button, causing the horrid “feedback.”
I leaned back and, miraculously, the feedback stopped.
People everywhere were staring. Right at me. I was filled with embarrassment.
And then I started laughing.
The girls and I got the sillies, thinking about me causing all that ruckus. It took every bit of control to not howl with laughter through the rest of the performance.
The kids’ dad and I moved to Tacoma with an Army transfer. We were at the bottom rung of the pay scale. Poor. Poorer than poor. Tristan was 16 months old and I was several months pregnant with Meghann. It was a wrangle to get a lease on a house, but we did it.
(I swear the house did not look like this when we rented it. This is the new & improved exterior.)
Our Household goods were super-slow getting to us, so we were given a few things to tide us over… one of which was a crib mattress for me to lay on. Tristan slept in the playpen and the kids’ dad slept in a sleeping bag (if I recall correctly).
One middle of the night, I heard something skittering above me, in the attic. Humorously, my former husband put his boots on (and nothing else) and grabbed a trenching tool and stomped around looking for the noisemakers. He didn’t find anything, but I laid there listening to the scratching far after he fell back to sleep.
When our household goods still hadn’t arrived a month later, the Army bought us a bed. A waterbed. How time-warp is that?!? We had those rainbow sheets on it.
We also had satin hearts in a swirly mobile hanging over the bed.
Meghann & Me
I had Meghann at home, in an Unassisted Birth (called a UC or “freebirth”)… the stupidest thing I have ever done in my entire life. You can read her story here if you are interested: Meghann’s UC Birth Story.
Relevant to this story, however, is my never-ending time breastfeeding.
I’d nursed Tristan for a mere 4 months and had big expectations to nurse until Meghann weaned herself (which she sort of did at 2.5 years old). So I was a nursing zombie. I was so tired, but then we got our tv and (we had to have gotten) cable because voila! there was MTV.
Meghann was born May 27, 1984. MTV had been around since 1981, but it was really in its heyday during the time I was watching it in the middle of the night, baby at my breast. In fact, the first Top 20 Video Countdown began in March 1984 (and it SUCKED! Watch it on YouTube!), so right before Meggie was born.
The songs that stood out most for me, the ones I waited for with baited breath:
Cyndi Lauper – Girls Just Want to Have Fun– (WOW! The people in it are incredibly diverse for that time period. I never noticed before.) Tristan loved this video, especially the part where the girls are floating in the bubbles/circles and going around. I can see him as if it was yesterday, in his footie pajamas, dancing and pointing at the TV.
While Holiday was Madonna’s first hit, her first video hit was Lucky Star. From the first moment I saw her, I was enamored. She came out with a string of hits in 1984, but when Meghann was a newborn, Borderline was the video I salivated for. (Clearly, I know wayyyy too much about Madonna’s early career!)
We’d inherited a sofa bed from the kids’ dad’s parents, a little larger than a loveseat, with two big square pillows to sit on. I’ve scoured my thousands of pictures and the Net looking for the sofa. This is the best I could find.
Here is how the sofa opened into a bed.
I sat on the couch on the right side. Every time. Before Meghann was born. And after she was born. That was my spot. I plopped a feather pillow with the rainbow pillowcase under my right arm, holding up my elbow, and I would nurse for hours. Sitting on that right side of the couch.
At night, we just sat nursing by the light of MTV. We kept the volume low for her dad who had to work the next morning, but we still bee-bopped to whomever MTV put on in the wee hours.
One dark early morning, I was nursing on the right side of the couch and out from behind the huge square furnace we had in the living room, came a rat. Then another rat. Then 3 baby rats.
I screamed bloody murder and the kids’ dad ran out, scaring them so they skittered back from whence they came.
How to Kill a Rat
When the Landlord finally came over, he gave us some mouse traps and rat food. He walked around showing us where they were getting in. One place was behind the toilet which freaked me out every time I had to use the bathroom. Picture fat pregnant me with my legs raised while I did my business. Ugh.
The landlord gave us the perfect solution to keeping the rats out.
Crush some glass and sprinkle it where the holes are.
I stood there blinking.
“Uh, I have a toddler! I cannot have crushed glass around the house.”
“Well, that’s the best idea I have.”
We checked the traps and poison a few days later and the bait had all been taken, the poison eaten… and the rats twice their size and twice as active.
We had to move.
By the time a solution appeared, Meghann was 4 months old.
Some friends of the kids’ dad were managers at an apartment complex and said they had a place we could move into. The challenge was we did not have the deposit, so they said they had not cleaned it yet and if we were willing to clean it ourselves, it was ours.
We headed over right away to go clean, taking some more friends from the military. When we opened the door, ghastly smells wrapped around us; cigarette stench was the main foulness, but there were others we could not parse out.
The walls in the living room were vile. Drips of nicotine painted them.
Where the previous tenants removed photos, we could see what the once pristine white walls had looked like.
Looking at the white areas, we saw we really had our work cut out for us.
We set to cleaning.
Being fat and not able to climb, I chose the kitchen. Kitchen HELL I should say. Not only were there nicotine streaks, the people before us cooked with grease. A lot of grease. A lot of spattering grease. Within 5 feet of the stove, the grease and yellow cigarette goop challenged each other for dripping space.
The only way I could think of cleaning this disgusting mess was with SOS Pads. Steel wool with soap on them if you aren’t familiar. I set to wetting the SOS pad, then scrubbing the wall, that blessedly, had glossy paint. Small favors.
I was cleaning madly (literally, not very happily doing this hard work) and got right there around the plastic plate where the plugs go in the wall when suddenly there was a huge -POP- and a giant blue flash that zipped up my arm and threw me against the refrigerator across the kitchen. People ran in to see what happened and I innocently told them what I was doing and their eyes all bugged out.
“THAT’S METAL AND WATER YOU PUT IN A LIVE SOCKET!”
I didn’t know!
What I did know was my right arm felt like it had been smashed with a baseball bat from fingers to shoulder.
I was banished to the couch that had just been brought in. I quietly smiled, grabbing Meghann and sitting on my side, nursing not only my baby, but my really hurting right arm.
We cleaned as best we could, the place looked normal again, but there were lingering smells we just couldn’t seem to get rid of.
One night, while I was sitting on the right side of the couch nursing Meghann, Tristan playing on the floor, their dad had had enough of the growing stink. I told him it smelled like rotting potatoes and maybe we accidentally left some in a box somewhere in the closet.
He set out to find the horrid stench and pulled the boxes out, throwing stuff wildly around the room. I yelled asking if he couldn’t please be neater? He did not answer. I just heard him as he went from room to room, under the bathroom sink, into the kitchen, under the cabinets… digging digging… and throwing things, many of which ended up on the hall floor.
He came up empty. Then looked at me menacingly.
“What?” I was still nursing Meghann.
“GET UP NOW!!!!”
I jumped up, Meghann still attached and he pulled off the cushion I always sat on and there, on top of the mattress mechanism, was a rat. A dead rat.
A SQUISHED FLAT AS A PANCAKE DEAD RAT.
It had been under my ass! FOR MONTHS!
My former husband began laughing his head off. Reliving the rat’s last moments.
“I can see him! ‘Oh, some peanut butter and jelly leftovers!’ Then SQUISH, you flattened ALIVING RAT!”
He jumped around the room, doing the killing-the-rat routine half a dozen times.
Yeah. Me and my fat ass had killed a rat that had been 3 inches from my lap and my baby. I started crying which made him laugh even harder, telling me how funny it was.
Then he said he was going to get something to get the gross flat thing off our sofa. I begged him to throw the couch away. He refused, loudly reminding me we had no money for furniture and it was the only place I could nurse. He came out of the kitchen with Playtex yellow gloves on and a spatula. I could not watch.
He laughed and laughed as he scraped the disgusting animal off our couch’s pull out bed top, then danced outside to the dumpster and threw it all in.
The room still reeked and he looked in the kitchen, finding the Carpet Fresh. He came back and sprinkled the carpet fresh where the rat had been squished to death by my flopping-on-the-couch butt.
To this day, the smell of Carpet Fresh reminds me of that horrid stench. The smell that lingered until we were able to throw the couch away a year later.
As you can imagine, I hate rats. I can barely write it without shuddering with revulsion. Because of my rat-phobia, everyone in my life has agreed to call them “Potatoes.”
And damned if that flat rat didn’t smell like rotten potatoes.
Napa Rose is my absolute favorite Disney restaurant. Besides the exquisite food, the staff is one of the most unobtrusively attentive.
I’ve eaten at Napa Rose with my family (several times), just Zack and I (several times) and by myself (a few times). I can remember almost every dinner, too. That’s gotta say something.
Michael Jordan, Master Sommelier
The very first visit, Zack and I were in awe. The decor of the restaurant, how it overlooked Disney California Adventure… and then there was Michael Jordan.
Jordan isn’t at Napa Rose anymore, but we were blessed to experience him during his 8-year tenure. He’s a Master Sommelier, 1 of 15 in the world!
When we were seated, we studied the wine list, then decided to ask Jordan for his recommendation. He came up, a delightful smile on his face… one of the most humble men I’ve ever met. We talked for a long time and when he learned I was a midwife, he said his mother was a midwife and she’d delivered Frank Sinatra (who was 13.5 pounds and had an incredibly difficult birth) in Hoboken, New Jersey. Apparently the birth was so difficult, they called in a doctor who used forceps on the baby Frank Sinatra, scarring him for life. And then he said that Dolly Sinatra delivered him! What a fun story that bonded Jordan to us within minutes. And he did, indeed choose an awesome bottle of wine for us. That night and every other night we ate there.
After my gastric bypass in 2001, a woman in Anaheim wanted to meet to talk about my experience. I was eating tiny bits of food at the time and did worry about what I was going to eat. I didn’t need to! The chef blended up some of their mushroom soup for me and I took my first slurp with him standing there, loving the soup so very much.
About 10 spoonfuls in, I began to feel ill. The mushroom soup was incredibly rich with cream and my new gastric bypass body could not handle it. I began to dump (when the body cannot process sugar or fats and floods it with insulin to try to metabolize the offending food… called Dumping Syndrome).
I excused myself from my new friend and hightailed it to the bathroom so I could moan in peace. The hypoglycemia was so bad (and I did not recognize it at that time), all I could do was lay on the cool floor, curled into a ball. Someone heard me and went to Jordan who called EMS. They got there fast, while I was still clinging to the ceramic floor and kept asking me if they could give me an insulin shot. I was in a daze, but haltingly explained the gastric bypass and the dumping that comes from it. After 30 or so minutes on the floor, the distress slowly lessened. EMS stayed to take care of, or transport, me. I remember when I could sit up again, realizing I was laying on a bathroom floor… one of the grossest places on earth. Blessedly, the restaurant had just opened so at least it was still clean and I wouldn’t have nightmares about acquiring germs and laying in filth.
I said goodbye to my friend and drove the hour back home.
Dining with the Kidlets
I can see us eating at Napa Rose right this moment… as if it was yesterday.
The 4 kids (Zack’s son included), Zack and I and Napa Rose. Michael Jordan would choose us a nice bottle of wine and we would settle in for some great food and fun conversation.
One particularly hilarious conversation occurred when I was on-call as a midwife. San Diego was 90 minutes away, so when I went, I asked my ladies to give me an earlier heads-up than they might have otherwise. So when one of my moms called, I excused myself and went to talk in the bathroom, away from the table.
When I came back, the kids started peppering me with questions: Did her water break? Does she have gloppies? (Gloppies are when women are getting ripe, losing their mucus plug, etc.) Is she engorged? (If she was nursing.) I could hardly talk from laughing so hard at how my entire family knows so so much about childbirth and breastfeeding… through osmosis!
We ate here so often, we all had our constant favorites.
Zack’s son loved the Sizzling Beach Rock Appetizer.
The rock under the shrimp was hot as fire and the food on skewers would be laid on the rock to cook. It really was an awesome display of creativity.
My favorite was the Lobster Martini. I can taste it right this second.
Lobster, avocado, mango and a pinch of something spicy combined to delight me every time. If I went to the restaurant and it wasn’t on the menu, the chef would make it for me anyway. I sure would love one now!
Michael Jordan had an enormous garden at his home and when the heirloom tomatoes came into season, he harvested them and brought them to work. Organic, so so so sweet, with a light mango dressing. Delicioso!
While the desserts at Napa Rose were amazing, sometimes I wanted the Cheese Plate. Exquisite cheeses and breads, always something new each time I went.
As I said, the desserts were amazing.
This Sampler Plate has 3 of my favorite things at Napa Rose: the Vanilla Crème Brûlée, the “World’s Best Hot Chocolate” (at $13 a cup!) and the crunchy lacy thing standing up on the Chocolate Mousse in the back.
I loved the crunchy lace cookie-like treat and would ask for a big bowl of them. Yum! Especially with the Hot Chocolate!
Zack, on the other hand, liked some dark chocolate while he finished off our delicious red wine that Michael Jordan had chosen for us.
I would love to visit Napa Rose again. Tonight! Instead, you go for me!
I’ve done dozens of diets, been prescribed Black Beauties & other speed (starting at age 8), belonged to many gyms, taken Phen-Fen (with success, but with heart valve damage), tried Topamax (fail), used Wellbutrin (fail), had a Roux en Y Gastric Bypass (with fabulous success, then epic failure), done hypnosis & acupuncture (fail & fail), become a daily Mindfulness Meditation fanatic (fail for weight loss/huge win for pain relief), have tried to have anorexia, then bulimia, hand-written hundreds of thousands of journal pages, letting them “hold” my pain, shame, revulsion, self-hate, wishes, fears, hopes &, eventually, resolution with my size.
I remain in resolution.
I will never diet or take diet drugs again. Ever.
Time & Money
Thinking about the masses of time and money I’ve spent trying to lose weight makes my head spin.
Going to the gym
Writing out menus
Researching rules and techniques for success
Real life or online support group meetings, including social networks talking about losing/gaining weight
Shopping slower to read labels and make sure food is “appropriate”
Learning new cooking methods
Fighting with family about the change in foods in the fridge and cupboards
Probably eventually buying more “bad” food for my family because they whined so much about foisting my diet on them
$28,000 cash for RNY gastric bypass (GB)
Can I include the time and money (including the taxpayer’s) for the years of therapy discussing and crying about all of this?
I was a Fat Activist in the mid-late 80’s, mostly in the lesbian community. I’ve written about being fat-positive for almost 3 decades.
In the beginning, when I was in my 20’s and early 30’s, I was healthy… labs were fine, no diabetes, my joints or feet didn’t hurt. I crowed (bragged, was arrogant) about how it was the fat-hating that made fat people sick and die, not the fat itself.
Now, at 56-years old, I see how delusional I was. I am well on the road to dying before most people in my family did, and they all had diabetes, too. My future resides in my memories of my Cuban relatives & the diabetes complications they endured before dying. Heart attacks, going blind, having toes, then feet cut off, eventually dying in a coma because the body just gave up.
I see it coming as if it was a roaring train heading right for me.
Litany of Pain
Here are my fat-related illnesses and issues:
Type 2 Diabetes (diagnosed at 34 years old), now on 2 insulins and metformin
I heal terribly because of the diabetes, often needing antibiotics for residual infections
Stage 3 Kidney Disease from the diabetes
Pain with every step I take
Osteoporosis and arthritis in my feet, which have broken 3 times just from walking for exercise, and one foot breaking while swimming
Broke one foot falling off the Wii Fit Board trying to exercise… needed 3 surgeries to repair
Arthritis in my lower back, was on opioids for 8+ years for the back pain, becoming incredibly addicted, finally getting clean 3 years ago (yay me!) Now I use Mindfulness Meditation for pain relief, though many times I wish for some Norco.
It took me years to find surgeons I felt safe with to get my 4 hernias repaired (one surgery) and then my gallbladder out (a separate surgery, with 3 hospital visits afterwards because of infection)… several turning me away because of my enormous belly size (blessedly, I found the docs and those issues are resolved)
Bone loss from possibly 2 main sources: lack of exercise & the GB
Walking with a walker, but should be in an electric wheelchair, my feet hurting so badly
Using an electric wheelchair when I shop
My world has gradually become smaller and smaller. After 32 years in birth work (where I hurt daily as well), I am now a sedentary Phone Sex Operator. I live in a small space and leave the house only for doctor appointments, physical therapy, shopping and seeing my doggies at mom’s house.
Writing that makes me sad.
Part 2 On Its Way
In Part 2 of My Wall-E-esque Life, I will talk about the place the Fat Advocacy Movement does have in our lives. While it might not be health (despite the incessant refrain that it does), it is most assuredly have an enormous place in our physical and emotional world.
If I died right this moment and someone had to go through my room, either throwing things away or giving them to my kids, they would find, in several different locations, stashes of candy.
right next to the insulin
behind the medications
candy canes from 2 years ago
Quite the mind-fuck seeing the candy juxtaposed with the insulin and metformin, isn’t it.
rolling my eyes
I come by the behavior honestly.
Growing up, mom was periodically on diets. When she was, so was the entire household. I called the feast or famine cycle, “Celery or Eclairs.” Either mom created delicious baked goods or we had celery and carrots filling the refrigerator. It didn’t take long to learn to bulk up for the famine that was surely to come in a couple of weeks. As a ravenous fat child, I scavenged for calories when we were supposed to be eating far fewer of them.
You see, my mom hid candy, usually plain M&Ms, in her drawers, under her marabou-lined lingerie. Being a nosy brat, I scoured the room, looking for the candy, then eating it when it was finally in my greedy hands. I didn’t process the information that mom would know I had eaten it when she couldn’t find it. That was irrelevant. Eating it was the goal and eat it I did.
When I was in a relationship (pick one), invariably my partner would have issues with my food intake. Reading my Facebook Memories makes me wince as, nearly every 2-3 days, I was starting yet another new diet or forcing myself to go to the Y.
When I went to the Y, I would ride the exercise bike until I sweat, go as long as I could, then get off and get in the car to go home.
And then began the fight, the tug-of-war to eat before I went home. Carl’s Jr. was open; I could go through their drive-through. I could go to the grocery store and get something quick to consume. Whatever I chose, I wouldn’t be able to eat it all, so would need to either throw the rest away or bring it home with me. (Another wrestling match in my head.)
I hated throwing the food away, especially when I could eat it later. So I’d tuck the leftover burger or sourdough baguette and cheese in my gym bag and hope Zack wasn’t awake so I could hide it in the closet.
My shoe holder (a long canvas bag that hold 12 pairs of shoes) was my favorite hiding place. Fuck, that is gross looking at that now. Then, it seemed like a brilliant idea.
I had to move slowly so the wrapping didn’t crinkle too loud, betraying my plan.
I’m sitting here trying to figure out how to explain how much I hate discussing food with anyone, partners most of all. My body tenses as if I was about to be assaulted, every hackle raised trying to protect my Self from the (invariably) negative and judgmental bullshit about to come out of their mouths. Yeah, yeah… I know… “they mean well.” Well, it doesn’t feel well. It feels horrid, defending myself, my size, my food choices, intake and why am I still fat even after dieting/exercising/having a gastric bypass/using medications/etc.
Don’t I know what eating so much/exercising so little is going to do to me? Don’t I see my Cuban relatives as the Cautionary Tale for my own future with diabetes?
I haven’t had but the briefest mentions of my weight with anyone besides medical people in over 2 years… and it has been heaven. Sitting and writing, even this far out, I can still feel the intense tightening of my muscles as I remember the inevitable tap dance discussion of my weight and food the moment someone began with, “Honey, I am worried about you.”
I’m not stupid. I was a health care provider. I’ve read the articles and papers about being sedentary and fat. I know my life span is infinitely shorter because I don’t “exercise and eat right.”
But the freedom from the stress of discussing it cannot be described. Doesn’t that account for something?
Fat, Weight Loss Surgery, Weight Loss Medications, Weight Gain all discussed.
I wrote and published this in my Navelgazing Midwife blog on May 3, 2007. Pictures have been added, but nothing else has been changed. I’m sitting here smirking about how arrogant I was throughout my life thinking I would find *A CURE* for my obesity. I was delusional, even in this post.
Pacer. I was called Pacer throughout Junior High because I had a “wide rear end” like the GMC car of the 70’s.
I’ve had eggs thrown at me while walking around the block trying to lose weight.
Another year, I had a kid throw oranges at me while doing the same thing.
I’ve been moo’d at hundreds of times.
I’ve been laughed at, stared at, and ignored.
I’ve had to sit at a table and chair because I couldn’t fit in a desk at school (for years).
I’ve had to shop from a catalogue (pre-Internet) because no store had clothes large enough for me.
I went without bra and underwear for 15 years because I couldn’t find a decent-sized fit that didn’t cut the hell out of me.
I lived with yeast under my pannus and breasts for decades because I thought it was “chafing” – trying to cure it with powder, corn starch, Gold Bond, zinc oxide, keeping hankies or bandanas tucked under my pannus, struggling to keep it dry. I blew dry it half a dozen times a day and still it remained seeping moist. Once I learned it was yeast, in my thirties, and used Monistat on it, my life transformed!
My thighs’ friction burned each other to the point of losing skin, especially when wearing panty hose (de rigeur in the 70’s) and I used bandanas to keep my thighs protected from each other. I remember learning about bloomers and thought they were the miracle of the world. I never owned a pair, but quickly thereafter, bike shorts came into my reality and I have never been without them again.
I hobbled so badly a woman took me aside at a dance and told me about Birkenstocks. She said she hobbled from her fat, too, until Birkenstocks and they saved her feet. Poor, I asked her how much they cost and when she told me they were almost $100 I almost choked! She told me they were worth the ability to walk and somehow I manifested the money and have only worn Birkenstocks since. I now own 20+ pairs.
I’ve sat on airplanes and spilled onto two seats, using two seatbelts, almost needing three. I either flew on near-empty flights or flew with my partner so I could seat-share with her
I lived with the food voices speaking, whispering, and screaming inside my head my entire life except for three distinct times: when I was on Phen-Fen, during the first year after the gastric bypass and now, on Topamax. When the food voices are “on,” they are incessant and never-ending. They don’t take a breath, rest, relax, and stop even for a second to consider my feelings or sanity – they merely run and Run and RUN through my mind until I want to scream – or eat to make it shut up. And even if I eat and the voices recede to the background for a moment, it isn’t but a moment before they are loud and screaming yet again. Is it any wonder I wanted to make them shut up?
From Whence I Came
I was dying of being 350 pounds. I am not dying of being 220 pounds. I can live easily and delightfully at 220 pounds. Would I like to eliminate the pannus I have from having three kids? Sure! Will I? Maybe, maybe not. Do I wear sleeveless dresses and shirts even though I have swinging arm skin? You betcha.
I remember what it was like being fat(ter). I remember the sadness, the anger, the feeling of being a victim I felt. I remember how I didn’t fit in – literally. I remember how I didn’t fit in chairs, through turnstiles, on rides, in booths. I remember how it felt every single time I would go out of the house, heave myself into my car, heave myself out of the car, walk into and out of a store, feel myself looked at by children and teenagers… and many adults. I remember ripping clothes because they were too tight, too old, I squeezed in the car and they got caught between me and the steering wheel. I remember being watched while shopping for food. I remember hating eating out because people watched me. I remember eating in secret. I remember hiding food because I didn’t want people to see how much food I ate. I remember hating how little control I had over myself. I tried, every day, to do better. To stop the voices. To stop eating. To stop eating so much. I hated being so observed.
I remember using my writing skills to move Fat Acceptance forward by outlining each ride at Disney World (I went by “gardenia” back then) and how fat people would do on them… writing about health care and fat acceptance… writing just using the word “fat” (which made some people [usually not fat] very uncomfortable) itself!
I’ve been to rallies and stood next to Fat Acceptance chicks and spoken on behalf of Fat Moms and Fat Dykes – asking (demanding) that we get decent chairs at the Gay Pride Festival, that we be remembered when tee-shirts are ordered at all events, and that everyone remember fat is just another way of Be-ing.
When I got really angry, though, was when I started seeing my lab work going downhill. For years I’d bragged about how great my lab work was even though I was fat. Until I was 34, everything was great. Then, my Hemoglobin A1C, my glucoses, my cholesterol… everything went to shit. I didn’t pay that much attention until I was hospitalized for a kidney infection that was complicated by extremely high glucoses. With a family history of diabetes (I am Cuban); I couldn’t just sit and watch the glucose/kidney correlation with abandon.
I’d always despised when people said they’d had Weight Loss Surgery (WLS). I disgustedly spat out the words, “Mutilating Surgery” as I watched a fat person choose WLS. I didn’t even want to hear their story. I didn’t care. There wasn’t reason enough to me for someone to cut apart their body that way. It was repulsive to me.
Weight Loss Medications
Drugs were no different. I’d been given Black Beauties at 10 years old and a variety of other weight-loss drugs over the years and none of them worked and all of them made me even fatter.
Diets were stupid and I’d long ago given up on any diets. (At least publicly.) Privately, I tried a couple for a week or so, but couldn’t ever do anything for longer than that.
But, when I was getting sick, I had to do something and chose the method of the moment and that was Phen-Fen. It seemed ideal and, at that time, it was.
Phen-Fen was a dream! Within 3 days, my mind shut up and the voices were gone. I couldn’t believe something could actually make the voices stop! I loved it. I was on Phen-Fen for 19 months and lost 111 pounds. I was still 230 pounds, so wasn’t any thin thing, but I loved where I was – in a silent world of normalcy.
When they took Phen-Fen off the market, the voices returned and came back in a furor I’d never heard before. It was as if they were so angry at being silenced for so long, they were going to tell me 19 months’ worth of what they wanted me to hear. I was forced to listen. And I ate. And ate. And ate. I gained 130 pounds in 9 months.
Immediately, my diabetes, cholesterol, triglycerides, sleep apnea, stress incontinence, PCOS, IBS became issues I would contend with for another 10 years. Sure, I’d end up with a heart defect from the medications, but even all these years later, I waver about whether I would take Phen-Fen or not if it were legal again. The drug’s quieting effect was that restful to my mind.
Weight Loss Surgery
When the illnesses overtook my body and I was so limited in mobility and I was really looking at the last days of a very unhappy and sickly life, I had to make a choice about what I was going to do and I chose the Roux en Y Gastric Bypass. It was almost cruelly ironic. I couldn’t help but laugh. My fat friends, long gone from my now world, would have been disgusted and would have been… long gone… just at the news of my choice.
My choosing to have Weight Loss Surgery (WLS) reminded me of lesbian friends who went back to men or Christian folks who chose abortion or other such dichotic, head-twisting ideas that make one’s circle of friends wonder what got into us. If I hadn’t been in my own body and head, I’d have thought I’d lost my mind.
What was I about to do? What did I expect out of surgery? Did I think I was going to be a svelte size 6 at the end of the gig? What was I going to do with all my loppy skin? Could I love me smaller than the fat chick I had known and loved for 40 years? Would I even know me smaller? What would I fight about/for now? If I didn’t fight for Fat Chick Rights anymore, who would I be? If I fit in the chairs, who would I be mad at? I was so worried about being lost. So lost.
I had surgery April 5, 2001 and was meticulous with my post-op care and therapy. I lost 100 pounds in 10 weeks simply by being compliant. I wasn’t racing to lose weight, but was racing to save my health and within days, I was off most of my medications and within weeks, all of them. I ended up losing 190 pounds in a year, but wigged out when I put on a pair of size 8 jeans. I absolutely loved being able to shop anywhere, adored walking, crossing my legs for the first time in my life, sitting on my partner’s lap, fitting anywhere I tried (and it took years to figure out my own size in relation to things) and doing cartwheels (I have pictures). My kids didn’t know what to make of me!
By year three, I’d regained almost 100 pounds. I was still fairly healthy, but mobility was becoming an issue once again. The sleep apnea was returning as well. The voices had returned with a vengeance. It was the worst of all the returning difficulties.
(I wasn’t like some of my co-WLS friends who were suicidal because of weight gain. I took it in stride, knowing that most WLS post-ops regain 50% of their weight back. It didn’t make me do more than shrug and sigh about my recurring health concerns. I had thought I’d had enough incentive to keep enough weight off to keep those at bay, but, alas, I was as human as the rest of the gang.)
I never had any illusions of being small forever, but I didn’t really think I’d have to diet again. And yet, I found myself considering diets – the most disgusting shit fat people are told they have to live on in order to be treated humanely in this society.
Blessedly, I still couldn’t eat the massive amounts of food I’d eaten pre-op. While many say they are fat without eating thousands of calories a day, I ate 8000-10,000 calories a day and was unable to see that – or admit that – until I’d had the gastric bypass. I was still able to eat plenty to weigh 250, though! Even with a stomach the size of a shot glass. How’s that for a food addiction?
Anyway, this isn’t really meant to be a play by play of my diet history, but know that through the last few years, I tried a few diets, drank that crap Slim Fast (recently), considered Opti-Fast, Nutri-System, and anything else I could think of that I couldn’t do before WLS and have failed just as miserably now as I did then. How could I think it would be different?
What I really was searching for, however, wasn’t the loss of weight; it was the silencing of the voices inside. The screaming inside my head was becoming so loud; I could hardly hear myself think. Some days, I thought I would go crazy from the cacophony. I begged my psychiatrist for help, over and over again. Please, please, don’t you have something for these voices? You have something for the auditory hallucinations of my Bipolar Disorder, where are the medications for this? For a year, she worked with me to get my BPD and my extremely precarious depression into a place of balance before she would even begin talking about food voices. Once I was stable enough on the meds, she whispered a possible solution.
Topamax has become my/the new Phen-Fen and I am blessed to have it in my life/head/mind.
Since starting Topamax, the voices have left completely. I am able to eat when hungry, stop when full (to my pouch’s full, not my old stomach’s full), and not be hungry again until a real mealtime is supposed to be. Before Topamax, I grazed nearly continuously and ate meals inbetween the grazing. Since starting the medication, I have lost 30 pounds, sleep apnea, the feet pain, the knee aches, the glucose spikes and my periods are regular again. Just those 30 pounds made a difference.
I am not on medication to lose weight. I am on medication so I don’t try and crush my hands through my skull and make my head shut up its crazy never-ending screaming for food, Food, FOOD. I don’t know what it is in my bio-chemical make-up that creates those voices, but if I hadn’t ever had Phen-Fen before the Topamax, I’d never have known the voices could be quieted; I’d never have even known the voices had a name.
But, I know them now and they are what made me the fat, angry woman. The voices.
So, this still fat woman isn’t so angry right now because the voices are quieted… drugged, if you want to say that. I don’t really care what you want to call it; they have shut their damn mouths! I can think, function, meditate, talk and even make love without hearing the continuous imploring to find food. I only hope the medication doesn’t have the same sad ending Phen-Fen had, of course, but I’m living in this moment… staying in the joy today.
Circumstances surrounding my life have made me sad and even mad at times… the way people have treated me, not treated me, the way I have had to settle for less (so to speak) most of my life because of being so fat, being called names, kids thinking I was pregnant years after having had my babies, looking in the mirror and seeing someone I could barely tolerate looking at. I wonder now, not so fat, if I am still mad at those things. I am certainly unhappy that my fat sisters and brothers have to suffer those indignities I used to suffer – but I also see that people are far fatter today than they were when I had surgery 6 years ago.
(I have made the interesting observation that I spent my childhood as the fat freak and got WLS as an adult and soon enough, more kids will be fat than not and those who have WLS will be the thinner freaks!)
As a fat chick, I also had such a great life as a very sexually active dyke… danced and played and support grouped myself silly! I might not have been able to walk all over the world, but I sure could ECV all over The World (Disney World, that is!)! My sedentary lifestyle left me plenty of time to write and develop Internet relationships, many of which are now a decade old. I am in a glorious relationship with my Sarah who loves fat chicks of all sizes and I am mom to 4 great and wonderful now-grown kids who loved their mom fat and who are extremely de-sensitized to fat people look-wise, yet highly sensitive to their needs when out and about. I am very proud of them and their love for people; I know that my fatness had a giant (har) place in their gentleness and amount of kindness for different people.
Making Space for Fat Folks
Fat acceptance certainly still has a place in my life. I still work hard to keep fat information in the forefront in my life. My holistic healthcare office accommodates fat folks as easily as non-fat men and women. We have gowns that fit people up to 600 pounds. We have chairs that hold 550 pounds. I made sure the massage tables held 500 pounds. We have a chiropractic table called a Hi-Lo Chiropractic Table that allows those with mobility issues to stand and be lowered gently instead of having to climb on the table. Our pregnant women use the Hi-Lo, too, of course – they can lay on it, belly down, because the middle drops out… sometimes the only time they ever get to be on their stomachs during their pregnancies.
I have a speculum that is appropriate for the women who might need that. I made sure the exam tables were situated in a way that the legs would be comfortable during an exam (I typically don’t use stirrups, but can if a woman wants to). I own a blood pressure cuff that not only has a large cuff, but also has a thigh cuff for a super-size person’s arm. I also learned how to take blood pressures in areas when the cuff is too small for the upper arm – and teach that to student midwives, nurses and doctors everywhere!
When interviewing practitioners, I make sure they are comfortable with fat clients. I use the word “fat,” so they quit startling when they hear the word.
A Fat Midwife
I am the rare homebirth midwife who takes “obese” clients and doesn’t automatically see them as high risk, sick, Gestationally Diabetic, or an automatic transfer to have a cesarean. I see women as they are and will work with them where they are. We have to address food and food issues – just like I do with every single pregnant woman – it just feels deeper with a fat woman because of how harsh it is in our society. But, being a fat woman myself, I have to believe I can make it somewhat softer, somewhat gentler than it could be with someone who has permi-glazed skinny eyes.
Today, I am a fat, joy-filled, life-filled, spiritually speed-growing woman. I am not perfect. My writing doesn’t adequately say what I want to say all the time. If you want to get to know all of me, come spend time with me… a lifetime with me… and even then, I suspect you won’t know a fraction of who I am. I am still learning who I am. Every day, I see new facets of my Self, places where I think, “Ha! I didn’t know you were there!”
These conversations have allowed me to get thoughts out that have wanted to be written for years. I thank you women for the prodding to move forward. You still might disagree with me and my choices, but your disagreements can’t change them. They are made. I will still have had WLS. I will still have taken Phen-Fen. I will still take Topamax. However, I am listening to you all to be more careful to speak more personally and watch my language when I speak of “some women,” – and I ask that you also have a moment of patience with my prose.
I might still make you a fat angry woman, but I’ll keep writing if you’ll keep reading. I promise to keep listening.