This is Not a Drill: CDC’s 7 “Forbidden Words”

 

CENSORED-FACE
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entitlement

diversity

transgender

fetus

evidence-based

science-based

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The Washington Post relayed the information from a CDC & Trump Administration meeting Thursday night, December 14, 2017 that when the CDC presents their upcoming budget paperwork, they are forbidden to use the above 7 words.

I thought this was fake, ran to Snopes… nope. It is real. Checked Twitter. Real. Checked valid news agencies. Real.

I’m shaking I’m so angry… and even scared… of what this administration is doing to our democracy. By forbidding words, it is no longer a democracy.

Democracy has been dying since Trump took office.

Treating science as a matter of opinion rather than an objective, evidence-based reality appears to have become a hallmark of the Trump administration, particularly when it comes to climate change. So, too, is scrubbing certain words and information from discussions, documents and websites that don’t fit with Donald Trump’s vision. The Department of Health and Human Services has dropped information on its website about LGBTQ individuals.”

Orwellian Dystopia

This edict is one of the most terrifying things that have happened and are surely not the last we will see.

We cannot sit quietly and let this happen. I know many many people have been out protesting, but we have to find another way to be heard.

I am apoplectic… and hope you are, too.

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I Left Facebook Over Cyberwarfare

Backstory

I watched a few days ago as the attorneys for Facebook, Google and Twitter faced the Senate Intelligence Committee, listening as the content of the “platforms” I use was defended. And not defended well.

I have been on the Internet since 1995, although I am hardly a geek or adept at the goings on behind the scenes. However, listening to these lawyers (surely, quite well-paid) not explain what happened with the “Russian propaganda group called Internet Research Agency that created a conflict….” within the Americans reading their content, terrified me.

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Loving Facebook

I loved Facebook. For 9 years. People left during the election and I was flabbergasted how anyone could leave, especially during such an important time. At times I pulled back from the more political groups I followed, but generally, I was present throughout the election experience.

Until now, I’d never considered leaving Facebook, but as the information has begun unfolding about how Russia infiltrated Facebook, some of which it seems they even knew about, I began getting uncomfortable there. I closed my Navelgazing Midwife FB Page, seeing small seeds of political discontent there, whittled my Facebook Friends down to 50 from over 400 at one point, but still, these past weeks, I began squirming more.

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As a writer, the Freedom of the Press and Freedom of Speech are enormously important to me. I’ve had a hard time watching as far-right speakers (that have not incited violence) refused a place to speak and share their thoughts. Do I wish they would shut up and go away? Absolutely. But, they are Americans, too, and deserve to add their voices to the discourse.

But that isn’t the same as having to endure propaganda from inside or outside our country.

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My Vulnerability

I can be pretty discerning, especially when it comes to medical or scientific data. But, I have always been easily swayed with some arguments. I’ll lean one way hearing one side, feeling sure that is the right path. Then, I’ll hear the other side and re-think my whole belief system based on that information.

I am really vulnerable to slick talkers and those with psychological skills I cannot recognize or counter. I try to stay away from these arguments, but during the election (and especially now), it is impossible to do. I have said several times recently: I love my Echo Chamber. I simply cannot process the other side’s views without a near breakdown of my values and beliefs.

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I’m not sure if it’s a mental illness in me that makes me so vulnerable or if others are like that, too. Knowing it, though, whatever the cause, I had to make a move to protect my mind and heart.

Stepping Away from Facebook

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So, I deactivated my Facebook account with a message to them stating my concern about their lack of Internet safety. Not sure if I will ever go back, but certainly not before massive changes have occurred to protect my spaces there from the propaganda that lured so many of my former friends.

I will write instead of perusing the Trending topics, saving that for Twitter, which I am still debating about leaving. I need to write. I have so many things I want to say.

Hopefully, without Facebook, I will find the time to do just that.

My Disgraceful History: KKK

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Racism, Hate, Hate Groups, Black History all discussed.

The horrific events in Charlottesville August 12, 2017, where the beautiful Heather Heyer was killed, were despicable acts of domestic terrorism. An outspoken beacon for ending racial and xenophobic behaviors, she will be honored always for her sacrifice to the cause of equality and peace.

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Hero, Heather Heyer

My Sordid Family Legacy

These clashes between the “right/alt-right/white supremacists/white nationalists/Nazis/etc. brings out, once again, the shame I hold in my heart because of my family’s history in the Ku Klux Klan.

My great-grandfather, Eddie Johnston, came from Sweden when he was young. His family (whose name was Johnson) had been bigoted before they even got to Ellis Island. When my great-great grandfather was asked his name, he added a T to his last name… because far too many blacks in America had the last name Johnson.

Memories of Racism

  • I remember when my family moved from northern California to Orlando, Florida in 1966; I was 5 years old. As we drove deeper and deeper into the south, I saw more and more segregation. I had no concept or context, of course, but absolutely remember the different water fountains and different bathrooms. Today, I am horrified at those memories.
  • In 5th grade, Mrs. Moore made it clear where she stood on the race issue. We still had no blacks in the school… the first and only black person came the next year… but as she taught American History, she lingered on the south’s views in the Civil War segment.
  • A friend of mine, Angel, brought in something that she wouldn’t even show me, but went to Mrs. Moore to ask if she could share with the class. I was near the desk so could hear it all, still not putting it into context for several more years. Angel had brought in some Civil War memorabilia, all southern in origin. I can still hear Mrs. Moore saying, “I believe the same as you do, but we aren’t allowed to talk about those things.” I went to sharpen my pencil and saw a photo of the white hoods and a burning cross. It was the first time I had ever seen the KKK.
  • My Nana, whom I was named after, was married to my Johnston great-grandfather. I distinctly remember her seeing black children, pinching their cheeks and telling them what cute “pickaninnies” they were. How I wish I could remember the faces of those children’s mothers; they had to have been disgusted.
  • When we spent weekends with my great-grandparents, watching television became an adventure in racism. The Flip Wilson Show, one of the first TV shows that starred a black person, was popular, but my great-grandfather would holler epithets at the blacks on his show and kvetched the entire hour it was on.
  • You know the child’s game of Eeny Meeny Miny Moe, yes?

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When we played the game it was “catch a n-word by the toe.” I had zero clue what I was saying. When I had kids, they would play the game and sing “catch a tiger by the toe,” but there was not one time I didn’t flinch when they began singing the song, fearing they would say that horrible word. They’d never even heard that version of the rhyming game; I still braced myself.

  • Peppered around the south are Brazil nut trees. We called them “n-word toes.”

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heavy sigh

Add the KKK to My History

I was about 10-years old when my racist great-grandfather lay dying in a hospital from emphysema. The stories began being told about his life, one of which was his history with the KKK. Apparently, he had been an active member in the 1930s and 1940s when my family lived outside New York City and then again when my great-grandparents retired to Florida in the early 1960s. Hints that he might have been a grand wizard wafted about as well.  I have no idea either how to find out if that is true nor do I have any desire to learn more about his/my shameful history.

How I Was Raised

My father, a Cuban, was called the n-word in high school (in Miami) and my mom’s family became apoplectic when they became engaged. Not sure if my mom had some inherent understanding of racial issues, but she was a supporter of civil rights issues in the 60’s. Not that she could march or anything having 3 kids one right after the other, but she said she did speak up as much as possible with friends and family.

For whatever reason, we just didn’t say the n-word at home. Except for what I mentioned above, I cannot recall ever using that word to describe anyone or use as an epithet.

It took until junior high, which bused in blacks, before I heard the word used regularly. I didn’t connect the word with racism until long after I graduated from high school. I remember, in high school, hanging out with band members who “joked” about being in the KKK, how they were looking for local meetings and even talked about burning crosses. I sat mute, confused and lost. How much more oblivious could I have been? I’m baffled at my inability to see the graphic evil stewing around me.

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Somewhere along the line, my mom gave me the book, Black Like Me… a not so subtle teaching of stepping into another’s shoes… black shoes. I remember reading it as if it was yesterday.

After my parent’s divorce, my dad married a deep south-thinking bitch. When she met my Dominican husband, her face pinched tight and she asked, “Are you black?!” the word “black” spit out like a bitter pill. Somewhere in me, I sat up straighter and mentally stuck my tongue out at her.

In fact, his grandmother was black, 2 of my children being brown, the last white like me.

Confronting My Own Racism

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It took (too) many years coalescing all that I’d seen and heard into some semblance of understanding.

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I’m sitting looking at the blinking cursor, not even sure where to go from here.

pausing some more

I need to amend a sentence I wrote above.

“I cannot recall ever using that word (the n-word) to describe anyone or use as an epithet.”

Amendment: Out loud.

After not using that word in my life, how did it jump into my mind when I was frustrated or angry with a Black person (usually in the car)? Where did that (disgusting) habit come from?

The 1980s were a really introspective time for me. I tackled issues like boycotting, feminism, inner-homophobia, non-violent communication & childrearing… and began exploring my beliefs (and lies) about racism and xenophobia.

(This is much harder to write than I expected.)

I am the embodiment of white privilege. I might have Cuban blood and a Latinx surname, but I have been indoctrinated in the ways of the white culture.

Despite working with Latinx migrant and immigrant women for a couple of decades, learning Spanish, and being able to make platanos maduros, I remain steeped in whiteness.

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My Apology

I acknowledge there is very little I can say to alleviate the damage done by me and my family, but I have to apologize, nevertheless. I am deeply sorry to everyone affected by those in my family… and perpetrated by myself, even inside my mind. I do not want forgiveness, would never ask for it because I do not think forgiveness is in order. I want blacks to know, in my heart, I do apologize every day. I try to use the privilege I have to rectify, support and lift up the blacks I see and interact with. I am so, so sorry. There are not enough words to express myself.

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Some Things I’ve Learned

“For a black American, a black inhabitant in this country, the Statue is simply a very bitter joke… Meaning nothing to us.”

James Baldwin, Ken Burns‘ America: Statue of Liberty

Black Lives Matter is an amazing group that holds black people in the esteem they deserve. I love their goals of ending the country’s systematic incarceration, ending police violence with regards to black folks and being “unapologetically black,” fighting for reform of the justice system that is overwhelmingly against blacks and standing tall in their shared problems and successes. I’m listening.

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It makes my heart ache seeing what’s happening with this country because of 45. Each of us has a role to take in ending the pain and growing chasms tearing our country apart. I cannot march, but I can write. I need to write more.

“What’s different, he said, is that the world now has a history of what Nazism is and what it led to, which it didn’t have 75 years ago.

“We don’t have the ability to pretend like it’s not happening,”

Listening Hard

I-am-listening

Life Lesson: Circling the Beauty

Boudoir Beauty

roxx mastectomy scar tattoo

A friend of mine had boudoir pictures done. She’d had a difficult few years, including a double mastectomy because of breast cancer. It took every ounce of (emotional) strength to agree to the photo shoot, wanting it as a surprise to her several-decade-long partner. When the proofs came, she was shyly pleased at how she looked. Most were fairly modest, but others did show her precious scars that saved her life.

Timidly, she showed her husband.

His response was: Nice lighting.

Broken-hearted and filled with unnecessary shame, she came into our secret group and shared a couple of the more modest photos asking if they were that bad that he didn’t even comment on what she looked like.

My friend’s pictures are stunning. When I opened the first one, I had shivers from the beauty of seeing this woman, literally, laying bare the fears she’s harbored for so, so long. (As many of us in this society do.) Of course we all held her close and loved on her, and told her what a doofus he was for not “seeing” her, but all of our approval was a drop compared to what she’d needed from him.

I’ve thought of this for several days now, asking the couple of guys in my life why a husband would do that? Why he couldn’t even muster a “You’re beautiful,” even if was fake. My male friends said about the same thing: Men suck.

Ye Olde Body Image

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We women struggle with our body images, many of us since childhood.

I remember when I first began having sex, I never wanted to get on top because my breasts drooped off my chest, not remaining in pretty round orbs like the girls in Playboy. Then after having one giant baby after another, I didn’t want to get on top because my entire mid-section sagged down with gravity. Suddenly, my breasts were the least of the flopping about.

Just sitting here writing this, I remember the shame acutely. I have tears dripping from the corner of my eyes because I find myself so repulsively ugly. I feign not being embarrassed at all these doctor appointments, but the reality is I cringe every time someone needs to touch my body.

Sexy Shame

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When I go to Sex Parties, there is no shame from anyone. Bodies are bodies are bodies. Most of us there are old enough to know life before Internet porn, so, I believe, have a more realistic view of growing-older bodies and sex. Besides under the covers, the only place I am free to be naked is with my kinky and swinging friends. (Even still, I am always nervous about taking my clothes off at the beginning of the evening. NO ONE EVEN CARES! Yet, I still do.)

Our Bodies Turning On Us

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Fat, folds, scars, sags, creases, hair where we don’t want it, no hair where we do want it, adult acne (what the fuck are we doing still getting acne in our 60’s?!), leaking when we sneeze, farting at inopportune times… belching, using your inhaler before having sex, having not one, but two pillboxes to fill every week… having to eat by the clock so your blood glucose doesn’t go too high, or goddess forbid, too low! (One of the not-so-funny funny things is you have to shoot insulin into a roll of fat. Every. Single. Time I have to give myself a shot, I roll my eyes at the luck of so many gooshie sites to choose from.)

And let’s not even begin in the genital area.

“Rejuvenation”

People with means might be thinking, “Not me!” and so many begin having plastic/reconstructive surgeries as early as 16. That girls under 20 are asking for labiaplasty because they think their vulvas are ugly makes my heart hurt. Can an entire generation of women feel even more body shame than I have about mine? It seems so.

It’s sad to me that so many girls and women… and men! think our bodies should be porn-perfect or fantasy-ready.

I have no easy answers.

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Bipolar Diary: Depression Deepens

TWMental

Depression

The last 2 weeks have sucked even worse than when I wrote on July 13, 2017. Tears. Tears. Never-ending tears. The suicidal ideation is coming more often and is more vivid than when I started the Paxil. And the damn hallucinations are back.

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Almost all of my time is in bed, either curled in pain (another post), staring at the ceiling or sleeping. I leave I Love Lucy on in the background. Sometimes Friends. I’m listening to Mists of Avalon (a book I love), but when I listen in bed, I fall right to sleep. I’ve replayed Chapter 6 four times already.

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artist: Edvard Munch

An Odd Sorta Depression

When looking for images about depression lying, I came across several pieces like this one below:

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Not sure if I’m just more familiar with my depression than when I was younger or if it has really shifted, but I do not hear the lies the girl in the image does… nothing negative about my body, how alone I am in the world, how fat/ugly/sick I am. I did when I was younger, but not anymore.

I just feel sad. An overwhelming sadness. A pall of melancholia that separates me from the rest of you. I cannot even touch what I am sad about except for the endless distress I have about our country because of 45. But this joylessness is deeper than the fear-for-our-lives kind. I feel like I’m under the thick glass of my Nana’s cake pedestal, so close to others, but unable to penetrate the barrier of dreariness to make a connection.

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Medication Changes

The psych doc upped the Paxil to 30mg after 2 weeks on 20mg. He said he still might have to increase it when I see him in 2 weeks. For fuck’s sake, can’t this stuff take effect already? I hate this waiting part.

paxil 30

I have weaned off the Cymbalta. Is that the reason for this huge dip? Who knows anymore. He wanted to increase my Risperdal, but I refused; the eating is out of control with more Risperdal… can’t abide by that.

An aside: I despise the new packaging that seems to be taking over the medication world. I am not stupid, can follow directions, but they are incredibly difficult for me to get into. I’ve asked the Pharmacy to open them for me and then I rip the inner blister pack out, throwing the outer box away. If you haven’t see them, let me introduce you.

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“Follow these 3 simple steps,” it says. Push the blister pack all the way in, then press on the “lock release button” on the left . Finally, pull the sliding pack out at the same time as pushing the spot on the left. I wish it was as easy as they make it sound! It’s almost worse that rubbing my head and patting my belly at the same time.

Suicidal Ideation

I’ve had lots of suicidal thoughts. My cub stayed with me one night when they were especially bad, reminding me every few minutes that Depression is a Liar. Hearing that, knowing it for certain, is what kept (keeps) me going. Hearing that so-and-so loves me doesn’t do much for my mindset because I rationalize that away easily. Depression Lies, however, works wonders.

Depression is a lying bastard

The thoughts of suicide are so enticing. They call to me seductively as if they were sirens on the ocean’s rocks.

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I try to block them out listening to various albums I have memorized. The Eagles, Carly Simon, Sting (Living Sea), and, of course, Hamilton: An American Musical.

I also try to find positive recovery-from-depression-and-suicidal-thoughts articles and posts online. This is one I go back to over and over:

Suicide Prevention: How to Help Someone who is Suicidal and Save a Life

“A suicidal person may not ask for help, but that doesn’t mean that help isn’t wanted. People who take their lives don’t want to die—they just want to stop hurting.”

When I had my first serious clinical depression in my late teens, I didn’t understand the “wanting the pain to stop” aspect and teetered really close to the edge of death.

As I got older and had some decent therapy, I was able to verbalize the inner turmoil and excruciating emotional pain that was drawing me towards dying. Understanding that I didn’t really want to die, but just to stop hurting… a pain that went so deep as to injure my soul… I was able to cling to those brief seconds of “medication will help remove the pain… hang on a little bit longer.”

Medication and therapy have not failed me yet.

Working/Not Working

Work has been nearly impossible the way I feel. I can do one call, then need 2 hours off to regroup. The calls are easy, mostly with regulars, but the energy expenditure exhausts me. Even writing this post has taken 4 days so far. Ugh. I need to be able to work!

Okay, I need to get this out to you all. It is not a cry for help, I promise. I will not hurt myself, have no plans to.  It’s just those random thoughts that flow through my mind… sometimes like heavy cinder blocks and others like wafting vapors. As long as they continue moving on the conveyor belt, I think I’m okay and headed towards healing.

trudging along

Thanks for listening

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Always reaching for help.

Bipolar Diary: So, So Depressed

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I can barely function. Writing has become nearly impossible. I see the Psychiatrist tomorrow morning at 8am. I am hanging on tightly until then.

Despite what I write next, I will not hurt myself. I will not vanish into death. I promise.

Visions of suicide float through my mind. Romantic images of dying like Ophelia (trite, I know) wander, unbidden, throughout my day.

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artist: Simmonds

I mentally count my meds, seeing if I have enough to make me fall asleep forever.

Even as I sleep 18 hours a day, unable to work, I am still always exhausted.

Adolph von Menzel
artist: Adolph von Menzel

I cannot wait to get help tomorrow.